The BIG "C"

Happy Monday

2011-02-07T06:02:00.000-08:00

Today is chilly and rain, again! Ya know, rain is an absolute necessity. I know that, you know that. I have just seen too much in the past weeks. I have taken up the "hobby" of riding a bicycle (OK, not too far or fast) and it has been either too cold or too wet. Tried walking instead but the same applies.
I did discover that I can take a stroll around the outer perimeter of SuperWally and get a mediocre workout. Have you ever measured just how long that stroll is? You might be surprised.
This all brings me back to my medical oncologist. When I was down 30 pounds in weight he said to gain. When I started gaining I told him that I was getting too much weight on. "Nope, you're doing fine. Not to worry" Next visit "Doc, I'm beginning to weight too much.", again the same response. Couple of visits later ( 6 wks ), "Hey, you're gaining too much weight"!!. Well, you said to continue when I told you that the last time I was here.......Well, you need to stop now. Gee whiz, can you please make up your mind?
The off-shoot of all of this is that now I'm overweight and sedentary. Gotta get moving and loose this extra weight. Gotta get my svelte, pre-food figure back (HA !)

Genealogy

2011-02-06T15:28:00.001-08:00

I have dabbled in the search for my ancestors for years, never getting really serious about the quest.
During the past six months or so I have taken the quest up again. I have dug around and have found people that I didn't realize were related, by blood or marriage.
This weekend I have been given a true and exciting thrill !! With the assistance of the wife of one of my cousins I reconnected with a person that I have not seen or heard from or about in over 60 years! Thanks to Anita I now know where my long lost (to me) cousin, Carmella is. Carmella is almost 9 years my senior. I remember her because she took time to play with me when I was only 3 or 4. I remember her as being a beautiful girl (even as youngster I had an eye for the girls). When my Mom, Dad and I moved from the North Carolina mountains to the South Carolina Pee Dee area we seem to have lost most of our contact with the mountain folk. That was/is tragic. My sister and I missed out on knowing our grandparents, cousins, aunts and uncles. It is something that we would love to reclaim but that's not possible. We can, however, strive to make as many connections as we can with those that are still alive and remember those that are no longer with us.
Thanks, Anita and Carmella for putting a really bright spot in my day.

Bike Ride

2011-01-27T11:52:00.000-08:00

Today I attempted my first bike ride in a gazillion years. Surprisingly enough, it was my legs that wanted to quit first. Lungs did exceptionally well (I think) all things considered. This is where I rode. It is at the Northwest District Park just west of Leland, NC. The surface is paved and it was dry. Not much activity there today but it will be a different story when softball and tennis seasons start up.

iMapMyRide: Jan 27, 2011 12:23 PM

Find more Cycling Routes / Bike Rides in N/A, N/

This map shows 0.0 miles but the actual route is 0.56 miles.

Now, if I can just get myself into the habit of doing this at least 3 times a week !!!!

CT Scan 4 weeks ago.

2010-12-15T14:54:00.000-08:00

I have now had three (3) "clear" scans. My oncologist is happy, my children are happy, my wife is happy and I'm ecstatic.

Looking forward to Christmas. My shopping for gifts in complete! I still have one or two to get wrapped but that is the small stuff that we have all be told not to sweat.

May you all have a wonderful and merry CHRISTMAS (yes, CHRISTMAS, not HOLIDAY) and a very happy New Year.

February 2010 SNOW

2010-02-13T07:00:00.000-08:00

We had snow last night. First time in several years we have had any accumulation.
My darling Bride had to go to a Trauma Seminar this morning in Wilmington. The roads
were actually in good shape. The NCDOT had ample time to spray the main and secondary roads before it all started.
I took a side trip to Wrightsville Beach after dropping her off at the Hilton. Got some pretty nice pictures there. One is of a SNOWMAN on the beach !!

I have several others so check them out on my Facebook page.

Stay in, stay dry, stay warm.

Still Kicking

2010-01-16T03:19:00.001-08:00

I had another CT scan about a month or so ago. My Oncologist said that things continue to look good in the lungs. Scar tissue, decrease in size of the affected lobe and corresponding increase in size of the opposite lobe.
It's been a 12 1/2 months since I finished my CHEMO and RADIATION. I'm back up to my "pre-treatment" weight. How much is that, you ask? Too much, I say.
Always remember, PRAYER WORKS, don't give up hope, and be kind to your care-givers.

2009-07-04T05:03:00.000-07:00

I have to learn to watch what/how I say things. In the previous post I mentioned "last CT" and my wonderful sister wanted to know why I was NOT GOING TO HAVE ANYMORE. I guess a better way would have been to say the "scan I just had". Last doesn't always mean "Last = FINAL".

2009-06-30T16:45:00.000-07:00

Today I got the results of my last CT Scan...................
It was a GOOD report!! Doctor says everything looks like it is supposed to look.
I know that my Bride has been on pins and needles awaiting this report and now she can rest a bit easier.
Over the weekend we bid farewell to the Bride's first husband's sister and my step-son's best-est aunt. Duger was like the older sister that she never had and a second Mom for him. She "adopted" me into the fold too. She was a wonderful and great lady. She will be missed by all that knew her.

Wal-Mart - Don't ask me what I really think......

2009-05-04T14:28:00.000-07:00

Those of you who have read this thing from the beginning know of my disdain for WallyWorld.
They have proven, once again, that they are NOT worthy of my money. Bride and I went shopping Sunday before last, gathering a smidge more than $200 worth of groceries (mostly) and a few other things. When we went to the register we told the clerk that we wanted to put $100 on this card and made certain that she heard and appeared to understand. NOT !!! She ran the whole kit and kaboodle in on the card. I asked if she had heard what we requested and she told the Bride that she (the Bride) had to put the amount in......we've done this enough to know better. We went to Customer "Service" to get this straightened out but the best they would do is tell us that we would be able to get a credit on our account in 10 to 14 days. NO WAY!!! I was steaming by now and told them to refund me in CASH. They did this but not liking it. If their service department hadn't already completed the oil change I would have canceled that too.
We went to Harris Teeter to start over on our grocery shopping. I will try very, very hard NOT to visit Wal-Mart again.

We are in for some thunderboomers this afternoon/evening. We need the rain, or so I've been told. I don't really want it to rain because then the grass will grow and it will have to be cut......
I long for a green concrete lawn.

Today. Why today??? Why not?

2009-04-29T16:47:00.000-07:00

Several have asked what's going on since I don't update very often.
Let's see, my Bride murdered her motorcycle, breaking her arm in the
process. Of course it goes without saying that her pride was injured,
probably more than anything else. I think that I can safely say that
she has given up riding the motorcycles.
As for me, I think I'm doing fine. My oncologist told me that I could
have my porta-cath removed (May 6th !!). I actually take that as a
good sign. Clinical trial is moving along. I have "graduated" from having
injections each week to a 6 week schedule. Feeling good, still working
5 days a week. I have realized that I am old enuff to retire but have no
idea what I would do if I did.
Today was my Bride's birthday and we went out for dinner. She gets to pick
where when it's her birthday. Next week is our anniversary. She gets to pick
where when it's her anniversary too.
Weather is beginning to remain warm. Skies have been clear lately. Hope they
will stay that way. I actually want to ride my bike to work a couple of times.
Here's hoping that everyone has a great week and if I don't update very often,
a wonderful summer.

2009-03-21T11:53:00.000-07:00

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Valentine's Day

2009-02-15T05:41:00.000-08:00

Yesterday was Valentine's (candy, flowers, etc) Day. My wonderful Bride
spent the day at a Trauma Symposium and I spend the day on call (& shopping).
I bought very little but did a lot of window shopping. Found lots of things
that I really would like to have.
We went to a "Valentine's" Dinner @ our Church. Cost the guys $15.00 and the
gals ate for free. They had a game that was kinda like "The Newlywed Game",
we won. The lady sitting next to me said they had been married the longest
time and we had been married the shortest time.......I told her that I did
not have as much to remember.....We got a huge basket filled with chocolate
stuff and cookies and mugs and other goodies. The food was also great. We
both ate the chicken breast and decided to pass on the prime rib. I just
can't eat a piece of meat the looks more alive than I am.
Time to get ready for Church, then I'm going to take my Bride shopping for
some printer paper that she is looking for....It has pre-printed backgrounds
with beach/ocean theme (dolphins in particular). Any one know where to find
such???

CT Results

2009-01-22T14:03:00.001-08:00

Had a CT scan on Monday of this week and got the results from my Radiation Oncologist yesterday.
After he looked over the report from the guys who read these things he told me to take my Bride out for a small celebration.
Everything looks much better in the lung. Lesion has shrunk (could be scar tissue from the radiation treatments per the RO) considerably. Nothing in the head (never doubted that, never was anything there to begin with), abdomen, pelvis or bone and nothing new in the chest area. Mediastinal nodes are now non-remarkable.
We went out to dinner......my waiter asked if I wanted ICE in my requested "room temperature" water......hated to tell him NO.
Things are looking up........

New Year !

2009-01-10T11:26:00.001-08:00

Well, it a new year and things are moving along.
Had very welcome visits from the daughters and
grand kids over the holidays. Always good to see
all of them.
Nothing much new with me. Had my porta-cath flushed
the other day. $188.00 !!!

Finished with Radiation

2008-12-15T14:21:00.000-08:00

Well, now I've completed the radiation treatment schedule. Actually finished
last Wednesday.
Still having pain in the esophagus but I've been assured that will diminish
and go away in time. Still, it's tough to eat solid food. BOOST, ENSURE, etc.
are the worst tasting things I can think of, right now.
Have a follow-up radiation oncologist appointment on Wednesday and a follow-up medical oncologist appointment next week.
Thanksgiving weekend did me in. I "caught" a respiratory infection of some sort and had to go on a "Z-PACK" treatment for a few days.
Took two weeks vacation and finally went back to work today. Not as bad as I thought it would be. Still, I'm a bit tired. All in all, it was a good day.
Have fun, get the Christmas gift shopping done early and then relax.

Yesterday, Tuesday, December 4, 2008

2008-12-05T01:34:00.000-08:00

Reached another milestone on my journey.
I have had my final, scheduled, CHEMO treatment !
There is a follow-up visit with the Medical Oncologist
for Dec. 23. Still have to have my porta-cath flushed
on a monthly basis. Those things are on my priority
list, but not as high as the treatments.
Speaking of treatment, today is day number four (4)in
the radiation countdown. I know the photos above are for
day 6, but they are so cute I had to use them.
Mr. "J" is getting into the countdown really good, per
the Eldest Daughter, and Miss "M" has her own way with
how things should be (or was Mom too quick on the trigger?).
Love the daily updates!!! Thanks.

TEN More Treatments Scheduled

2008-11-26T01:13:00.000-08:00

As of yesterday, I had just TEN radiation treatments left on the schedule.
My Daughter and the Grandkids are sending me "countdown" photos
each day. These photos have the kids posed with "today's" number.
It's so cute! Although they don't have a total grasp of what's
going on, "MR. J" does realize that Grandpa is sick and has to
take medicine everyday and the numbers represent how many more
time I have to take it. Both of the grandkids look great in this
photo and I look forward to receiving a new one each day.

I hope everyone has a great Thanksgiving!

Another Day . . .

2008-11-19T17:07:00.001-08:00

Met with my Radiation Oncologist today. He's says that I'm actually doing better than I think I am. I hope so, 'cause I've been feeling pretty lousy lately.
Treatments continue, each day. Have been eating a bit more and drinking a bit more.
Bride (the NURSE) says that as long as I pee at least every 8 hours she won't get too worried about dehydration. Doc says I should quit loosing weight (hard to do when ya don't eat).

Ruff weekend.......

2008-11-18T15:10:00.000-08:00

Had a pretty lousy weekend (should have know that would happen). Couldn't eat, drink or be merry! {{Glenn, the Capt. Morgan sounds good but will have to wait about a month}}.
If I take my narcotic pain relief I go to sleep and if I take the other one it deadens my esophagus and it feels like the food hangs in my throat.
Today I actually ate a chicken (UGH) sandwich plus some more chicken!! Drinking water is not an option that I like (see earlier posts) but it's better than becoming dehydrated.
The way my Bride has it figured I should be through with radiation and, possibly, chemo on December 9th. Keep your fingers and toes crossed. I am, especially, ready to get out from under the radiation treatments. After the chemo my taste buds might get back some of their function too.
I wish everyone a wonderful week!!!!!

The Blog is Back!!

2008-11-12T15:43:00.000-08:00

OK, so I lied a little bit. I couldn't stand not making all of you suffer by reading my trash, so here goes.....

If there is one thing that I have learned through all of this is CHEMO will, more than likely, make one constipated. Radiation treatment in the area of esophagus will diffidently cause one's esophagus to hurt.
The constipation is relieved by taking frequent (twice daily) doses of Sennocot and another preparation know as "stool softener". DON'T LEAVE YET, IT GETS BETTER !!!!
The esophageal pain is relieved in several ways.....the first attempt was with hydrocodone with acetaminophen. This succeeded in putting me to sleep when taken at the recommended dosage. Cutting back on the dose didn't help at all. No pain relief.
My wonderful, wonderful Bride put on her thinking cap and came up with a suggestion that we floated by the radiation oncologist yesterday. He said that he used this particular ingredient in a mixture to help with the pain (why didn't he give it to me the first time I asked?). This stuff is good!! Xylocaine, Malox (Cherry flavored) and benedryl. Numbs almost everything from the lips down. We left the pharmacy and went to one of our favorite restaurants for dinner (I had not eaten anything to speak of in about 3 days). I ate the almost the whole meal!!! Who would have thunk??
Today I ate most of three meals. I had been on a weight loss trip, almost 30 pounds in 3 1/2 weeks. My Bride is amazing!!!! I can eat, drink and be merry again.
Depression is no fun either......don't let it happen to you. I was getting or had gotten that way. Pain, even minor, that is constant, will lead you in that direction.

OK, I'm back on my soap box. Get ready to put up with my rants and raves. I think I have found my second wind.

Things end, eventually....

2008-11-07T01:52:00.000-08:00

This will probably be my last entry, at least for a long while.
It appears that I am not reaching one of those who I really need
to contact. Not that they aren't aware of what's going on, just
trying to ignore it.
My love and thanks to all who have contributed your comments here
and via email.
Life goes on and on and things aren't what we always want them to
be but we do have to play with the hand we are dealt.

Older Daughter had a question.....

2008-11-03T02:13:00.001-08:00

She wanted to know if I still talked to the Doctor after the Nurse on Friday....

Here's my reply:

Nope, after Miss High and Mighty finished her little speech, on what was going on and why, I was really way too "PISSED" (pardon the crudeness) to talk to anyone. I just have come to EXPECT and DEMAND customer service/patient care at an acceptable level and this HAS NOT BEEN FORTHCOMING at this particular practice. The major problem is that they are the ONLY radiation oncology practice in my town.

Sometimes you just have to take what you get, even though it is hard to accept.

The bright spot in my treatment regimen is my MEDICAL ONCOLOGY practice. Those are TRULY GREAT medical practitioners. I am not certain you can find any group more caring and professional, anywhere.

Some nurses SUCK (no Dear, not you).......

2008-11-01T16:58:00.000-07:00

Yesterday while I was at radiation the tech asked how I was doing. I mentioned my discomfort when swallowing. She suggested that I see the Doc after my treatment. I was agreeable with that, I wanted some relief.
After my treatment I was directed to the desk at the end of the hallway to see the Doc.
I was met by a nurse who seemed to know a great deal about my difficulty and proceeded to tell me all the things that I should and should not do. What I should and should not eat, and on and on and on. When she finished she asked, "Do you still want to see the Doctor? He will just tell you the same things that I just did."
This is not exactly what I had been told to expect by my radiation oncologist. He had assured me that he could keep me "comfortable" during this radiation treatment.
Guess I misjudged him and the practice. Sometimes you just have to ask yourself if you have made wise choices and this one of those times when I am beginning to have my doubts about the practice I chose to have my radiation treatment.

Ok, it's starting to be uncomfortable

2008-10-30T14:28:00.000-07:00

This is the 2nd week of radiation treatments and it's beginning to be a bit uncomfortable. Swallowing feels kind of like there's a small restriction. Not really painful, just uncomfortable. Heartburn is increasing also. Taking an OTC pill for that and it seems to be working. The doctor said what he would prescribe is the same thing and it would just cost more.
Trying to decide which liquid meal to have tonight.....even though liquids go down just like solids. Same feeling. The one thing that I remember from the doc is that I have eat, even if I don't want to. Hmmmmmm, Slim-Fast or some other meal in a can.....kinda like me and water, at first. Didn't like water but I have acquired a liking to that clear liquid.

Thought for the day

2008-10-29T14:42:00.000-07:00

Here's another one from my friend, Glenn . . .

'It doesn't matter how big a ranch you own or how many cows you brand, the size of your funeral is still gonna depend on the weather.'

~ Harry Truman.

Double Whammy Day

2008-10-28T15:36:00.000-07:00

Tuesdays are "Double Whammy Day", Chemo and Radiation.
The chemo nurses have me on a tight schedule 'cause I
get out of there after 3 to 3.5 hours just in time to
get to the radiation treatment on time.
All seems to be going well, the chemo has not been too
rough this time around. Actually it is not bad at all,
so far. I did have a bout of nausea for a couple of days
but I think it more from something that I ate.
The oncology nurses are top notch!!! It takes a very
special kind of person to do their job. I'm not too sure
that I could handle it. I would definitely recommend this
oncology practice to anyone in need of their special brand
of service. Of course this practice came highly recommended
to me.
Talked to the radiation oncologist yesterday. He seems pleased
with how things are going and keeps telling me that he will
strive to keep me "comfortable".....that portends discomfort,
right?? Hmmmmm, could be he's trying to tell me something. I
already know that this radiation thing can be uncomfortable(?).
Well, another day has come and gone. Have a great week.
Hug the Bride (or Groom), kiss the kids and thank God for all
of the blessings that you have received.

Glow worm?

2008-10-22T16:00:00.000-07:00

Today was my third radiation treatment. Nope, I'm not "glow-in-dark", yet. I think I counted five different "shots" each about eight seconds. Today seemed to just rush by much faster than the first two. My Bride was in the waiting area today and was impressed at the amount of time it didn't take.
Yesterday I began my new regimen of CHEMO. Now I'm taking two drugs (one new, one old).
The whole thing was about 3 hours. Low doses but one of them is really slowly dripped. We did manager to cut a few minutes off of it because we were going to run into my radiology appointment time.
Haven't noticed much in the way of side effects from either treatment type. I'm sure something will be coming along some day soon. I'm just hoping that it's not much. My guess is that I will lose my hair this time. One of my chemo drugs is good at causing this. Artificially acquired alopecia.
I once worked with a guy that had alopecia. He didn't have a hair. Well, he did have one, sometimes, on the top of his head. No eyebrows, eyelashes, facial hair, arm hair, etc. I do cut my hair short but not that short.
We have a female friend who has offered the use of one of her wigs in the event that I do lose it all.....her head is smaller than mine and she isn't a blond, which I've always wanted to be. Why?? Because I can probably have some comebacks for all of those blond jokes.
I have gotten verbose so 'tis time to quit for today. Until later, remember to hug your spouse and kids. Every night before bed tell them how much you love them. Give your thanks to God above for all that you have.

PS: EATJR, if you're reading this; I never have been able find the article you recommended.

Thought for today (and any other day)

2008-10-20T13:45:00.000-07:00

This is from my friend, Glenn. He and I worked together for a few years and I learned a great deal from him. He is one of those who matters.

There comes a point in your life when you realize who matters, who never did, who won't anymore and who always will. So, don't worry about people from your past because there is a reason they didn't make it to your future.

- unknown

Radiation begins

2008-10-19T14:56:00.001-07:00

Tomorrow morning, bright and early I might add, I will be getting my first
radiation treatment.
I was told be be at the office at about 6:30 AM for a treatment fifteen
minutes later.
While I'm usually at work earlier than that, it just seems strange to be at
a doctor's office that early.
I've been told it will all last about 15 minutes or so. That includes getting
positioned on the table and the treatment so I should be at work by shortly
after seven.
Of course I do have my apprehensions about this phase of my treatments. I will
just have to wait and see what happens.

Taco Soup Reprise

2008-10-12T05:15:00.000-07:00

Yesterday/day before "The older daughter" posted her story about Taco Soup. This inspired my Bride to do the same on a very cool and rainy Saturday. I think she used a recipe that she got from Eric, her son. Of course recipes are made to be tampered with so she used some ground turkey as well as ground beef. This was a huge pot of soup. I ate two bowls and she ate one and it didn't look as though any soup was missing from the pot. Great job!!
In the lull between treatments I have a taste for food and a semi-voracious appetite so I think I'm going to take advantage of the situation and eat!!
During the radiation segment I know that swallowing can get difficult so I want to get a few pounds added ahead of time. These guys don't want me to loose much weight right now.
Today is another grey, cool, damp one. Tomorrow and the early part of the week are supposed to bright and sunny!!! Once again, have a wonderful week, kiss your spouse, hug & kiss the kids and remind them all just how much you love them.

CT Time

2008-10-10T13:57:00.000-07:00

Got a call from the Radiation Oncology office this morning.....can you get a CT scan this afternoon??? Well, let's see what I can rearrange on short notice. Yes, I can do that, after 3:00 PM. Gee, you can't make it any earlier? No, after 3:00. Ok, that will work, just go right in and they will do you shortly after you arrive.
That's the way to schedule stuff (but I do prefer more notice). In, out, gone.
This one has contrast (IV stuff), they never do tell me what it is, they just want to know what I'm allergic to. Besides work???
Not a bad experience this time. These people are dealing with oncology patients everyday so they know what needs to be done. The Zimmer Cancer Center has really good people.
Looking forward to a fairly quiet weekend. I do have to get the oil changed in the buggy. Weather is going to be too wet to ride the motorcycles. Always seems to do that when I'm in the mood to ride. Oh well, I guess I'll just have to wait for a sunny day.
Have a great weekend!!!

Time to share

2008-10-09T01:52:00.000-07:00

My "older daughter" has shared my plight on her blog. I know that it was difficult for her to do. It is now time for me to share my daughter's blog with you. Her outlook on raising her two children and the happenings in that endeavor are sometimes hilarious and sometimes thought provoking but always interesting. Of course her hubby is a good guy who gets involved in all of this too, so it's a family affair. "Mom's Magic" is a good read. Visit her blog after you leave mine.

Radiation Treatments or how to glow in the dark without really trying

2008-10-08T14:11:00.000-07:00

Radiation visit today. Just an office visit. Met a real looser of a nurse, will not be seeing her again.
Friday afternoon will have another "planning" session. Shortly thereafter will have another CT scan laying in a mold that they will make for me (of me??). Then the oncologist will figure out where his target(s) are and how he's gonna attack them.
I know that there will be pain and discomfort involved, just keep your fingers crossed that I can handle it.
Until next time; Smile, it makes everyone wonder what you're up to.

GOOD NEWS !!

2008-10-07T15:21:00.001-07:00

Went to the oncologist today for the results of the CT that I had on 10/01.
Lesion in the lung has SHRUNK!! One of the nodes in the mediastinum has almost cleared up.
Go tomorrow morning to the radiation oncologist to schedule the radiation treatments. When that is done a call to the oncologist to set up the remaining chemo treatments.
To us, that is good news......

Middle of the night stuff......

2008-10-05T02:49:00.000-07:00

Today is Sunday and it's o'dark thirty in the morning, well it was when I got up.
It's really a pain to wake up in the wee hours of the morning and think about work.
Things just pop into (and out of) my thoughts at those hours. Can't get back to sleep.
Too late to take one of those little pills that the Doc prescribed. "You should have 6 to 8 hours to devote to sleep" when you take these things. Why is it that people think about work when they wake in the middle of the night?
I think I have this thing figured out though, when the Bride arises I'll go back to bed. That way I won't wake her or keep her awake and I can get some zzzz's.
I don't dream or think about exotic vacations that I'd love to go on. Nope, I have to think about work instead of balmy beaches, hammocks between palm trees and cool breezes. Why not dream about that cruise I've always wanted to go on? I day dream about it, what's wrong with a nighttime dream?
I hope each of you had a great night's sleep! I'm awaiting, patiently, for my Bride to get up so I can go back to bed.
Have a great day!

B-B-Q and other foods

2008-10-03T01:17:00.000-07:00

A friend left a comment about his father's bout with tasteless food saying that his Dad ate BBQ 'cause it was tasty. I can understand that!!! I love BBQ, but in my younger days I was spoiled by a little place outside of Darlington, SC. The place was "Skeet's BBQ". He cooked it himself for years and years then, I think his son might have supervised the pigs. Any way, that was the best vinegar based bbq that I have ever had. This place was open only two days a week and was always packed. First time I went it was around $6 for all you could eat. When last we went it was more like $10, not bad over a period of nearly 30 years.
Tasty food, served hot, served quickly (not fast food), served pleasantly. That's what we all want once in a while. With the economy like it is just no telling how long we (any of us) can afford the night out once or twice a week.

Have happy thoughts all day and keep a smile on your face (the smile will make others wonder what you're up to).

CT Scan Today

2008-10-01T14:32:00.000-07:00

Just another day in the neighborhood, pretty much. Had to get a CT Scan this afternoon. The Tech told me the injection of contrast could make me feel warm, I could taste it, etc., etc. I did get warm. That was it. This all lasted about 20 minutes. Great customer service (Ya know what I think about customer service or lack thereof)!!
Our day started out with a bomb scare at one of our locations. Seems the exterminator left one of his gadgets there and it was something "new" to the people arriving for work. Hey, better safe than sorry. Right?
Bride was feeling better today.
Have a great Thursday, Friday, and weekend!!!

Bride still kinda under the weather

2008-09-28T08:11:00.000-07:00

Woke up this morning feeling pretty good (me), but my Bride is still not in the best of health. Sinusitis is what I think is the problem. Trouble is the meds are making her feel even worse. They are clearing the sinuses but making her woozy. Hope she feels better really soon. She just doesn't get "sick", ever (well, almost).

FOOD is GOOD (why don't these two words rhyme?)

2008-09-27T18:17:00.000-07:00

My wonderful Bride and I met a friend at lunchtime today. We haven't seen her in about 3.5 years. Great to see her and catch up on her life.
We met at Red Robin (where I've never been) and ate. I don't believe I ate the whole thing!!! I think I made a piggy out of myself. Food hasn't been on my priority list of late, just didn't have any flavor. Today was definitely different!!
My other half is under the weather now and we are trying not to share the ills. She in the bed, me on the sofa, both watching "First Wives' Club" on the tube. She went to the Saturday Clinic @ her doctor's office and got some meds this morning. Like a good patient she took as directed. She's been kinda loopy since.
Me, I'm still kinda satisfied from lunch but have that nagging little bit of hunger trying to convince me that I still need something to eat. Well, maybe I'll give in to the temptation if I can find something sweet. Yeah, something sweet! That's exactly what is needed to finish of the day (no matter that I had a vanilla milkshake at lunch).
Enough for today, I am going to check on my ailing Bride. I just don't like to see her not feeling well.
Hope your weekend is a good one!

Chemo - 2nd Round - Lost Count

2008-09-23T15:43:00.001-07:00

Another day in the neighborhood. Not feeling the best in the world but I really
expected this. I was really tired going into this Round.
Have to keep up with myself though. Still able to work and function. That's a big, big blessing.
Have to find an essay recommended by friend, eatjr. I think this might prove interesting.

Chemo - 2nd Round - Post 2 day

2008-09-20T04:11:00.000-07:00

Another day when things weren't great. I have/had been told to expect that
but it doesn't help how you feel.
Actually managed to get down a decent serving of dead yard bird (chicken) and
a couple of mashed up red potatoes last evening. Nothing really tasty but it
was food. Still drinking H2O, plain. Just can't make myself try the flavor
additives......truth is I'm beginning to become accustomed to water. YUK!
Folks at work have been great! Understanding and pitching in.

Chemo, 2nd Round - Post 1 Day

2008-09-18T01:20:00.000-07:00

The steroids kept me awake most of the night. Very little sleep.
Went to work and stayed until about 1PM. Nauseated, mostly. Got
home, went to bed and finally got some sleep.
Food was not too appealing but I did eat some smashed 'taters and
a few bits of dead chicken (baked, of course). Later my wonderful
Bride cooked some of those little red 'taters. I ate some of those.
Got sleepy again and went to bed and to sleep.

Chemo

2008-09-15T16:07:00.000-07:00

Well, tomorrow is another day and it is time for another round of C H E M O !!
Have an MO (Medical Oncologist, for those of you that have forgotten) appointment
first and then the chemo. That (chemo) should take about 4 to 4.5 hours. Lot's
of sitting around getting bored with a needle in your arm and IV lines hanging
around.
It's even an ordeal to go to the potty. Good thing the IV stand roles around.
Last time I tried reading......got really bored, really quick. I tried to find
an "open" WiFi network but there isn't one in the office. I did find their network(s)
but they are secure. I tried eating but I decided that I could not eat for 4 hours.
They (the oncologists) did tell me that they didn't really want me to loose weight
during treatment but that would have been a bit of over-kill.
Going to attempt to read again tomorrow but really am hoping that I can sleep.
Would be an extra bonus if I could take a "sleeping pill" to help me while away
the time.
Hope you all have a wonderful week!!!

Another Thought from my friend

2008-09-15T13:56:00.001-07:00

This nation will remain the land of the free only so long as it is the home of the brave.

-Elmer Davis

Today is the first day of the rest of your life, use it accordingly.....

2008-09-13T02:36:00.000-07:00

I want to share a "thought for the day" I received from a friend:

Life has taught us that love does not consist in gazing at each other but in looking together in the same direction.

- Antoine de Saint-Exupery

Glenn, thanks for the inspiring "Thoughts" you have shared through the years.

Water, what would you do without it?

2008-09-11T18:07:00.000-07:00

Shrivel up and blow away?
Who knows? I still don't like that nasty stuff.
Why doesn't some enterprising soul invent some
kind of fluid that tastes good, is not yucky
sweet, has no calories, is colorless, good
hot, warm or cold ???? I might buy that drink.

Working too (much, hard, often). Not really, I
love my job. We are getting ready to open a big
new Women's and Children's Hospital this weekend.
The whole place is going nuts!! Lots to do, moving
people around to get all the tasks handled, people
out, shorthanded..... Hopefully things will even
out next week.

Started to rain a little bit on the way home this
evening. Forecast said rain today, well it did, barely.
I like my Bride's method of forecasting the weather:
Stick you hand outside, if it gets wet it's raining.
If the ground looks really white, it probably snowed.
This is the K.I.S.S. (keep it simple, stupid)principle
of forecasting.

My sister was going to come with me to my chemo next week
but her supervisor wouldn't let her have the day off. I
will miss seeing her but I do understand the Super's
decision. Love you, Sis.

Tomorrow is TGIFF !! Thanks goodness it's FINALLY Friday.

Have a great weekend !!

Hydration (Fluids, but not alcohol)

2008-09-10T16:09:00.000-07:00

Hydration is a problem for me at times. I HATE TO DRINK WATER !!
It is just totally BLAH!
Fruit juices are sickly sweet, even the unsweetened ones.
Have mostly sworn off of Cokes and just don't like Pepsi and other
carbonated beverages.
Picky jack@ss, aren't I?
Forcing self to drink H2O. Have to remind self that it's "good for me",
but, being the skeptic that I am, I don't believe me.
Things are actually going along quite well. Enjoying working. Keeps my
mind and body occupied.

Have a wonderful week!

(Jane, I'm still a nut. I've been called worse, believe me.)

Another thought

2008-09-07T04:33:00.000-07:00

Experience is what you get when you didn't get what you wanted.

- Randy Pausch, The Last Lecture

This young man, husband and father is one one of the people that I have
most admired.
Little did I know that shortly after his death that I would be diagnosed.
If you get the chance, and I urge you make the chance, search "YOUTUBE"
or elsewhere on the web and find "The Last Lecture". Watch it, listen to what he says.
Or you can follow this web address:

http://video.google.com/videoplay?docid=-5700431505846055184

It's long, interesting, and thought provoking.

PS: For those of you wondering about the labels I use for these posts.....
Blue Side Up = The sky is above my head.
Green Side Down = The grass is under my feet.

Hurricanes and other things

2008-09-06T16:37:00.000-07:00

Nothing new since my last post except for "Hanna".
Early this morning the center (I hesitate to say "eye" because
there wasn't much definition) was about 15 miles from here.
Rain, rain, wind, wind. I didn't see anything too drastic locally
but I'm sure that other areas had lots of water.
Sunshine and blue skies this afternoon.
Most people hereabouts went kinda nutso about the whole thing, but
then we have a lot of imported yankees. Did ya know that there are
two kinds of yankees? Good yankees and D*mn yankees.....the good ones
come for a visit and go back home. *GRIN*
No real problems that I am aware of. A couple of mild nuisances though.
Heartburn....could that be from the spicy chili? Still tired on occasion
(over working?). What can I say, I love my job.
Had my 10 day blood work drawn on Thursday. All appeared "normal" according
to my MO's nurse. While I was awaiting the results I did spring a leak
into the sleeve of my white shirt. Peroxide works wonders, folks. The vampire
errrr, phlebotomist, was kind enough to share this information and donate
the peroxide and gauze pads to get the mess mostly cleaned up.
I hope everyone has a wonderful week!
To those that left the comments.....I count you among my best friends, thanks
for the support.

Post Chemo - Days 2 thru 5

2008-08-31T02:47:00.000-07:00

I remember someone telling me that the second, third, etc. days would be a real bear. As good as I felt on the day of and the day after I really didn't think so. WRONG!
Lose of appetite, lethargic, weak, and just about any other word you can think of to describe feeling lousy. That was pretty much me.
Getting some of my appetite back now. Still drinking water and juice. Going easy on the solids but have had some.
Good part of the weekend is that my youngest daughter came for a visit! It's always good to see her. She can kinda open up my aspects of things sometimes.
Looking forward to a good day today.
More later.

POST-CHEMO - Day 1

2008-08-27T01:50:00.000-07:00

Today was a bit unusual, to say the least.
Was pretty hyper during the night and did
not get a great deal of sleep. Was tired
most of the day but still pumped up with
the steroid from yesterday.
HUNGRY!! I could have eaten any and every
thing is sight. (I'm glad I didn't find the
can of sardines in the pantry).
Became pretty "flushed" according to the
Bride. She called the MO's Nurse to see what
we could do. They wanted to call in a script
for XANAX (anti-depressant). Me who is hyper
as hades needs and anti-depressant??? Plus
it affects some of the other drugs I take.
Flush went away of it's own accord at it's
own pace.
Bride got to inject me in the thigh this
morning. I think she got a kick outta that.
A nurse who get a charge outta giving a shot!!!
That's hot.
Bride used my hyperactivity by assimilating
same and mowing the lawn and doing the laundry.
She also made a trip to the grocery for a few
items that we needed/wanted. I wanted ICE CREAM!
I also got PRUNE JUICE. Not too bad if it is
really cold.
Took all of my meds and actually had a decent
day. I did receive a couple of pages from work
and several emails. I have not checked my phone
at the office.
I'm going to attempt a few hours of work Wednesday.
Nothing drastic, just some paperwork and phone
work. Meet with a few people and check on my "people."
Today I leave you with this thought:

Life has taught us that love does not consist in gazing at each other but in looking together in the same direction.

- Antoine de Saint-Exupery

But I do reserve the right to come back later today and add more.

Chow

Chemo - Day 1

2008-08-25T11:36:00.000-07:00

Today went well, so far. Just got home from CHEMO.
Had three chemo drugs; Carboplatin, Avastin and Alimta.
Also anti-nausea drug, vitamin B-12, and a steroid.
Was told get some CLARITIN for possible bone pain
(highly recommended by UNC Hospitals); they don't know
why or how it works, but it does. A prescription for
another anti-nausea drug, and a drug (Nuelasta) to
stimulate bone marrow growth (Bride get's to give me
this one).
Everyone in the place acted very nice and seemed to
be sincere in the attitude they have toward the patients.
HURRAY for GREAT CUSTOMER SERVICE!!!!! Ya can't find it
in retail establishments except on very, rare occasions,
but it's alive and well in my MO's office.
Bride has gone to the pharmacy (NOT WALLY WORLD) to get
the anti-nausea prescription and relieve her tension by
going shopping at a nearby retail establishment of her
choosing (GRIN).
I'm having a happy day.....I'm actually on vacation from
work for the whole week. I've had two pages, two emails
and, luckily, no phone calls today. Truth be known, I'll
probably go back on Wednesday if, IF, I am feeling OK.
Have a Great! Week.

Another anomaly

2008-08-23T07:17:00.000-07:00

Bride and I went to Applebee's Restaurant for dinner last evening.
It's amazing how teenage and young adult females paste a dead grin
upon their faces when the headphone communication set is put into
place.
This thing seems to numb their brain. They appear to be awaiting a cue
or direct instructions from the mothership on seating directions. It's
really a sight to see.
We were directed to the far (shady) side of the restaurant for seating
at a table. I indicated that we would prefer a booth. Even though there
were open booths available adjacent to the spot we were standing, she
spoke into her microphone and suddenly we were being escorted to the
other side of the restaurant (sunny side, with blinds open).
We never did understand this seating fiasco.
The food was really good, which is unusual for a chain restaurant (in
my opinion, at least). The actual waitress (can I really call her that?)
gave pretty good service. Kudos. Of course when I ordered the RIBLETS she
was not certain which rib dish I really wanted. Had to open the menu and
point it out to her. After that things went pretty good. Refills were
numerous and timely.
Maybe I'm getting too critical in my old age, but Bride said that I should
mention Applebee's in the blog......this is the mention.
I would be remiss if there weren't a mention of BEST BUY...don't know where
they get them - associates, that is - . Went in there today with the intention
of spending several hundred of my hard earned dollars on a brand new computer.
While browsing around in another area I asked a female clerk where the GPS
units were. She pointed to a rack nearby. I looked but didn't see the
"accessories" for this modern day wonders. I asked, "Where are the accessories?"
Her reply was "Ice cream and cookies?" Ok, I know I'm a bit slow at times, but
did I miss something here??? When did BEST BUY start selling ice cream and cookies in the GPS section (or anywhere else in the store for that matter)?
I looked at this woman (not a teen or college age person, a fully "growed" adult)
like I had been hit. Told the Bride it was time to leave. I marched right out of
this place and, honestly, wish I go through the rest of my life without having to
set foot in there again.

(I think sales people have this "thing" about giving even decent service)

Pharmacies, Drug Stores, Apothocaries, etc........

2008-08-23T02:41:00.000-07:00

These places are a requirement of most of us. A place to buy toothpaste, tampons, film, candy, milk, bread, and, yes, medicines.
At times this can be a pleasant experience and at times it is the experience from hell.
Yesterday my MO's office called in a script for me to pick up. Asked her to tell them that I would pick it up late that afternoon.
Went to my local "wally world" pharmacy to get said meds, arriving at 4:40PM. Clerk (they are called ASSOCIATES in this place) asked for name & DOB, which I graciously provided.
She; "We don't have anything for you"
Me; "Are you sure? It was called in early today"
She; "NO!"
Me; "Could you check in pile of scripts to be filled and let me know if mine is waiting to be filled?"
She; "NO!"
Me; "Well, thanks!" all the while mumbling un-nice things under my breath.
Me; dialing the number to the MO's Nurse.
MO's Nurse; "This is MO's nurse, may I help you?"
Me; "This is me, you called in a script to the Leland Walmart Pharmacy for me earlier today and they are telling me they don't have a record of it.
MO's Nurse; "This is the SECOND TIME this has happened to a patient of our's today! If you can hold for just a minute I will check with the pharmacy."
Me; holding, holding, holding, holding, DISCONNECTED!!
Me; hit "REDIAL"
MO's Office Phone Maze Answers again.....Push the correct buttons to speak with MO's Nurse and get the GastroInterology Section. GI Nurse tells me that she will transfer the call to the correct extension. MO's receptionist answers and tells me wait just a moment and she will connect me with MO's Nurse.
MO's Nurse; "We were cut-off".
Me, to myself (DUH)
MO's Nurse; "I just spoke with the Pharmacy and your script is ready. I have no idea what the problem was. I had to call earlier on another one and it was the same story: They couldn't find it for the patient but it was right there when I called to check."
Me; "Thank you so very much for your help. Rest assured that this will be the final time I use the wallyworld pharmacy services."
Me: Back into the store and the pharmacy counter.
Clerk; "Name and date of birth?" (More of a demand than a request)
Me; "yada yada yada"
Clerk; "We don't have anything for you."
Me (getting pretty ticked); "I just spoke with my Dr's office and you assured the nurse that my script is ready."
Clerk; "I didn't tell anybody anything about your script."
Me, backtracking; "I used "you" to mean the entire pharmacy staff, not you in particular"
Clerk; "I don't have anything for you. You will need to step over to the Drop-off if you have any other questions."
Me; "Thank you, I will" (I said that????)
Me, at Drop-off window; "Drop-off Window clerk, I have a problem."
DOWC; " Just a moment, I'm assisting another customer."
Me: WAITING AGAIN.....Pharmacy Manager comes up to assist DOWC and another customer.
PM; "You can come to this window and she will assist you."
Me; "No, I need to speak with you."
PM; "Me?"
Me; "Yes, you"
PM; "What can I do for you?"
Me telling my story to the PM; "yada, yada, yada"
PM; "Well, this just came off of the voice mail at 4:20....and ..... oh, it's on my desk for approval now. It will be just a minute."
Me; "If I was in here at 4:40 and you got it off of the voice mail at 4:20 why did everyone that I asked tell me that I didn't have a script here?"
PM, ignoring my question; "Give me just a couple of minutes more and I'll have it checked for you."
Clerk; "Name and Date of Birth." (Demanding, not asking)
Me, gave same for about the second or third time in 45 minutes.
Clerk; "That will be $9.33, do you want cash back?"
Me; "No thanks."

Me, leaving this wonderful, modern, marvel of the retail trade asking myself 'How do they survive with the lousy customer service that abounds throughout the company?' Examples:
1. Can you help me with this? No, it's not my department.
2. Can you tell me where I can find fidoboxes? No, it's not my department.
3. Where is the Manager? She's out to lunch.
4. How long is the wait to have a script filled? One hour. (no other customers in sight)
5. How long is the wait for an oil change? It will be an hour (one other vehicle in sight)
6. What is this horrible smell in the grocery area? Something must be rotten somewhere.

Yes, the American Retail Trade is in good hands.
Sam Walton must be spinning over and over in his grave.
Of course Sears, JC Penny and the other BIG retailers are not much better.
The days of real customer service are long, long gone. Heck, most of these
"clerks" and "cashiers" can't even make change without relying on the computerized cash registers in use today. Most don't have a clue about MANNERS!!!! It seems that a great deal of them think of the customer as a distraction from their gossip sessions.

My little saga of today comes to an end on a high note.....
I picked my Bride up from the hair place and we went to dinner. I ate too much (have to keep my weight up per the MO and RO).

Hair....reminds me of another story. A friend (I do have a few) told me she would loan me her wig when my hair falls out. Told her thanks but no thanks, she doesn't have a blonde wig and I have always wanted to be a blonde.

I'm on call this weekend so I have to carry two pagers and a cellphone everywhere I go. Hope they all don't go off at once while we're at the picnic. (Hope the weather holds, we might ride the motorcycles).

Until next time.......Smile and make people wonder what you've been up to.

It's Saturday !!

2008-08-23T01:20:00.000-07:00

No work, at least not for me. We (my Bride and I) are going to a "Picnic" just before Noon. It will be at a local park. Hope the weather holds out. This is put on by a group that we belong to. Was fun last year and should be even better this year. Bride loves these things, but honestly, I will miss my air conditioned living room and sofa!

A friend from my not too distant past sent me a "Thought for Today" a few weeks back. It's receipt actually coincided with my diagnosis. It was a quote from Professor Randy Pausch. You really should look him up on Google or click on the link here. Here's what it says.

We can't change the cards we're dealt, just how we play the hand.

- Randy Pausch, The Last Lecture

This quote made me think about the situation I find myself in. I had seen and listened to Randy's "Last Lecture" via You Tube or something similar. The whole concept was intriguing and enlightening. I followed Randy's story until his death. I think that I draw some of my strength from this remarkable man and the 'life attitude' that he displayed.

There are more Randyisms out there and some are really good!.

Melancholy sets in.

I guess, above all, I just want those that I love to always remember that one little word, above all else, when they think of me.

Another Day

2008-08-22T17:06:00.000-07:00

Today I spoke with the medical oncologist (MO) again. We are on go for Monday morning. We're gonna try a three drug cocktail. The Radiation Guy (RG) wants to shrink this thing before he tries to cook away the rest of it. Hey, that's fine by me. The MO thinks this will work just fine. Chemo, three weeks later, Chemo and another MRI. If all looks well the RG will get his shot.
For those of you have never had something like this....some people just don't know how to handle the whole thing. Sometimes it's kinda comical, sometimes it kinda sad. Some times they whisper (why, I can still hear?), touch you when they speak (body-to-body transmission?). I know that each and everyone of them are sincere in their concern, it's just the way I see things (is my sense of humor distorted?).
This is MY relief mechanism so pardon me if it offends. I woke up on the "green side" this morning and I'm celebrating!
Love and laughter to everyone!

Downer Day

2008-08-21T13:46:00.000-07:00

Today I got a call from the Radiation guy.....leaves me a message to call Joe Blow (substitute name). I don't know Joe Blow from cow dung. Anyway I called and he told me who it was.
Bad news. We're (read that he is) going to delay the Radiation until the Chemo is finished. Seems the angle is not exactly right and he would blow away more of my lung that he wanted to. After the Chemo the spot should be smaller and easier to handle.
Oh, that's life. We have to play the cards we're delt. Right?
Have a call in for the Medical Oncologist so we can a better idea of what's going to happen now. Increase in chemo drug dosages? Longer chemo schedule? Wait and see.

The Oncologists

2008-08-21T13:27:00.000-07:00

First one was the Medical Oncologist. This is the dude that gives the poison shots....
just kidding.....these drugs are really powerful!! Had my blood drawn (by needle not by pen and paper) and they checked to see if I was a "blue blood", I guess. I wasn't.
That all appeared to be OK. He's a good guy, graduate of "THE USC" (for those of you who are not edumacated that is THE UNIVERSITY OF SOUTH CAROLINA. He sent me to the Radiation Oncologist.
This guy is pretty bright.....he's got a PHD in something or other (medical I would guess). There's more questions and answers. He tells me to come back in a couple of days and we'll get fitted for the ZAP of radiation.
In the mean time I had a PORT-A-CATH installed in my upper left arm. Not too bad, they managed to numb the area they were gonna cut into. This was on a Friday morning before 8:30 and I still had to work that day.
Saturday morning, before 7AM they had me in the radiology department at the local hospital for an MRI of the brain (could have saved all of us some time and me some money if they had listen when I told them the skull was empty).
Back to the Medical guy for a CHEMO-CLASS. That's where they tell ya what to expect after the chemo treatments begin. Doesn't sound like a lot of fun. Bunches of could's and maybe's and if's and and's. We'll just have to see.
Next trip was to the Radiation Doc. They took some x-rays and some measurements. Then the little lady said "I'm gonna tattoo you in three places." Wham-bam, thank ya ma'am. Hurt like hell, let me tell ya. Much more than having the Port-A-Cath put in.
I almost came up off of the x-ray table and probably would have except for the big old x-ray machine over my face.
Left there and went to the hospital again, this time for another CT. Seems they couldn't use the one I just had a couple of week previous.
Medical Doc starts scheduling everything.....begin Chemo on Monday mornnin, early, followed by radiation. Chemo once a week and Radiation 5 times.

Visit with Surgeon

2008-08-21T02:41:00.001-07:00

This guy is GREAT!! Takes time to talk, answer questions, etc. He whispers the word "cancer" though. I guess he must think that by doing that it's going to lessen the impact on the patient (me). NOT !
He then scheduled a PET scan to see if this stuff has spread anywhere else. This was done one day (during work) and I really expected to light the thing up like a Christmas Tree. Turned out to be a lot less than I thought, but still very serious.
Next comes the visit to the Medical Oncologist and the Radiation Oncologist.....the fun's just beginning.
Stay tuned for the next episode.

The CT Scan

2008-08-21T01:58:00.000-07:00

Went to the hospital for the CT scan (not crazy about these things either). This is an exercise in frustration. Hurry up and wait. Did you ever notice that nobody in a hospital or doctor's office reads your information. Each and every one of them ask the same questions again!! Do you really think my answers from 5 minutes ago have changed since I've been in this cold room, 1/2 naked, laying on a table?
CT scan goes well and they give me a CD to take to my doctor.
Head home a bit nonplussed about the whole situation.
Bride has high friends in low places.....makes phone call....in surgeon's office the next day!!!!
The saga continues.........

The Doctor Visit

2008-08-21T01:49:00.000-07:00

After several months of procrastination I finally let my bride make an appointment for me with a PULMONOLOGIST. This is the specialty that deals with diseases of the lungs and the respiratory system. Seems I had been having increased shortness of breath.
Things are going pretty normal in the examination and then he calls for a chest x-ray. I hate x-rays......
Oops, there is a small spot (1 inch or so), but it's near an artery so it probably isn't much, a shadow, perhaps. We need to get a CT scan just to be sure. (I love how Doctor's say "we" and the fact that they are always "practicing" medicine).